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- Aspects of Data Ethics in a Changing World: Where Are We Now?
- Data Protection and Ethical Issues in European P5 eHealth
- Ethical Considerations
Ethical Considerations can be specified as one of the most important parts of the research. Dissertations may even be doomed to failure if this part is missing.
If the address matches an existing account you will receive an email with instructions to reset your password. If the address matches an existing account you will receive an email with instructions to retrieve your username. Ready data availability, cheap storage capacity, and powerful tools for extracting information from data have the potential to significantly enhance the human condition. However, as with all advanced technologies, this comes with the potential for misuse. Ethical oversight and constraints are needed to ensure that an appropriate balance is reached.
Aspects of Data Ethics in a Changing World: Where Are We Now?
In spite of its promise to significantly ameliorate health and care practices, the momentous rise of eHealth technologies has been fraught with significant ethical and societal concerns. In addition, this chapter will chart relevant ethical issues related to the emergence of novel eHealth technologies. Finally, the conclusion will briefly explore ethical issues and their solutions in the light of the P5 approach. In spite of its promise to significantly ameliorate health and care practices, the momentous rise of eHealth technologies—an umbrella term that refers to a varied set of tools and resources such as health information networks, electronic health records, telemedicine and monitoring services, wearable systems, as well as online health self-management tools—has been fraught with significant ethical and societal concerns. Thriving out of the extensive use of sensitive personal data i. Aimed at providing an overview of the data protection regime and the main ethical issues associated with the emergence and progressive stabilization of eHealth within the context of the European Union EU , this chapter is structured as follows. Finally, the second part of the chapter will provide an overview of the main ethical challenges raised by the development and implementation of novel eHealth technologies.
Data Protection and Ethical Issues in European P5 eHealth
Not a MyNAP member yet? Register for a free account to start saving and receiving special member only perks. S ession II of the workshop was structured to provide an overview of the ethical and legal issues related to data dissemination. Department of Health and Human Services, outlined her assessment of recent and prospective legislative developments. Mary Ann Baily described underlying ethical issues raised by the use of microdata, especially longitudinal data that are linked to administrative records. In so doing, she articulated the conflicting rights and obligations of data subjects, producers, and users, and the role of government in providing a structure within which these conflicts can be resolved.
The committee must consider the sensitivity of the information collected and the protections offered the subjects. Respect for persons — Individuals should be treated as autonomous agents able to exercise their autonomy to the fullest extent possible, including the right to privacy and the right to have private information remain confidential. Privacy is the control over the extent, timing, and circumstances of sharing oneself physically, behaviorally, or intellectually with others. For example, persons may not want to be seen entering a place that might stigmatize them, such as a pregnancy counseling center clearly identified by signs on the front of the building. The evaluation of privacy also involves consideration of how the researcher accesses information from or about potential participants e.
While the EU's ethics review process is primarily concerned with ethics issues, your project must demonstrate compliance with the GDPR.
Research does not always involve collection of data from the participants. There is huge amount of data that is being collected through the routine management information system and other surveys or research activities. The existing data can be analyzed to generate new hypothesis or answer critical research questions. This saves lots of time, money and other resources. Also data from large sample surveys may be of higher quality and representative of the population.
Obtaining research data from human participants places ethical and legal obligations on researchers. The need to respect confidentiality and privacy can seem to conflict with funders' expectations that data will be shared wherever possible, but with careful planning, it is possible to share research data from human participants. A combination of gaining consent for sharing, de-identifying or anonymising personal data, and controlling access, can ensure long term access to sensitive data. Library Research Support team. Find your personal contacts including your tutor and student support team:.
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